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International Consortium for Oral, Head and Neck Cancer Awareness (ICOHANCA)

Oral and pharyngeal cancer is the sixth most common malignancy reported worldwide and one with high mortality ratios among all malignancies. Cancers in the mouth, tongue, lips, throat, salivary glands, pharynx, larynx, sinus, thyroid, and other sites located in the head and neck area together have a higher proportion of deaths per number of cases than breast cancer, cervical cancer or melanoma.

The incidence and mortality from oral cancer is rising in several regions of Europe, Taiwan, Japan and Australia. Although there have been significant improvements in treatment, many patients present with advanced disease, and 5-year survival rates have not improved overall for the last few decades. We know that the nature of cancer is changing and people are living longer after a cancer diagnosis.

Comprehension of early detection methodology and risk factors does not seem to change the incidence in many of those at greatest risk - such as people of low socioeconomic status, those in resource poor countries, and users of tobacco, alcohol or betel nut. However, a number of internet sites provide access to information about the risk factors, signs and symptoms, treatments, current research, and related news. Patients, survivors, and health care professionals can gain insights and many have links to other pertinent oral cancer data on the web and elsewhere for patients, caregivers, and the public. Amongst such sites are several significant organizations in USA, UK and France (Table 1) who have recently, following discussions centered on the first congress of the International Academy of Oral Oncology (IAOO), agreed to collaborate. None of these organizations are treatment institutions and they do not conduct clinical trials.

We propose that 2010 be an inaugural International Consortium year for a joint awareness event and that we identify a specific date(s) incorporating public relations events into a single International event. This proposal includes a decision to approach for collaboration, the IAOO (http://www.iaoo2007.com/), International Federation of Head and Neck Oncological Societies (IFHNOS) (http://www.ifhnos.org/), and the International Conference on Head and Neck Cancer (http://www.headandneckcancer.org/).

We welcome comments from interested individuals, organizations, countries, and governments worldwide to enhance awareness and reduce morbidity and mortality related to this disease.

Crispian Scully
UCL Eastman Dental Institute
256 Grays Inn Rd
London
WC1X 8LD
U.K.

Peter Boyle
Ex-Director
IARC, International Agency for Research in Cancer
150 Cours Albert Thomas,
69372 Lyon
CEDEX 08,
France

Terry Day
Director
Head and Neck Cancer Alliance.
P.O. Box 250550
Charleston,
South Carolina 29425
U.S.A.

Brian Hill
Director
The Oral Cancer Foundation Inc.
3419 Via Lido #205
Newport Beach,
CA 92663
U.S.A.

 

 

 

 

Vinod Joshi
Director
Mouth Cancer Foundation,
PO Box 498,
Wakefield
WF1 9AW
U.K.

Nancy E. Leupold
President
SPOHNC
PO Box 53
Locust Valley,
New York
11560-0053,
U.S.A

Jatin P Shah
President
IAOO

Jean-Louis Lefebvre
President
IFHNOS

Table 1.

Organization

Acronym

URL

Mission

Country of location

International Agency for Research on Cancer (part of the World Health Organization)

IARC

http://www.www.iarc.fr/

coordinate and conduct research on the causes of human cancer, the mechanisms of carcinogenesis, and to develop scientific strategies for cancer control

France

Support for People with Oral and Head and Neck Cancer

SPOHNC

http://www.spohnc.org/

meeting the needs of oral and head and neck cancer patients, and addresses the broad emotional, physical and humanistic needs of this population

USA

The Mouth Cancer Foundation

MCF

http://www.mouthcancerfoundation.org/

access to information on head and neck cancers and mouth cancer awareness campaigns. online support group provides advice and support for patients, their families and carers.

UK

The Oral Cancer Foundation

OCF

http://www.oralcancerfoundation.org/

reduce suffering and save lives through prevention, education, research, advocacy, and support activities

USA

Head and Neck Cancer Alliance

YBF

http://www.headandneck.org/

support to head and neck cancer patients and educates children and adults in the disease process, treatment, and prevention of head and neck cancer as well as supporting ongoing research in head and neck oncology

USA

   

Last updated: 01/01/2011